My body has never been the epitome of "normal".
While my mother was pregnant with me she had gestational diabetes. I believe my eye issues and possibly some of my other diagnoses could be linked to gestational diabetes because 80-90% of the conditions I've been diagnosed with do NOT run in my family. My mother had small babies. Out of her three children I had the highest birth weight. At birth both my sisters were 5-6 lbs each. When I was born I was almost 8lbs. Which I know can still be a normal birth weight but it was definitely higher than my mother's norm. At birth I had a heart murmur and jaundice.
Fast forward to first grade. When I was 6 years old my vision became very blurry. Within a few weeks I was at an ophthalmology clinic where I was told that I was LEGALLY BLIND. I couldn't even make out the big E on the eye chart. I'm so near sighted that an object has to be 4 inches or closer to my face before I can see it clearly. Over the years my eyesight has progressively declined.
At 12 years old I was diagnosed with a list of issues relating to my spine. Slipping down the steps on the school bus one morning resulted in doctors finding several spinal issues. At the orthopedic doctor X-rays and an MRI showed Kyphosis, Scoliosis, Degenerative Disc Disease, and a Pars Defect.
Everyday I wake up going about life as I normally would. I try to cherish the life I've been given. I'm no different from any other healthy human on this planet until... BAM! It hits me out of nowhere.
My symptoms are like thieves in the night. They come and go as they please. Stealing my coherence temporarily. Robbing me of my voice. Taking away my mobility. Something has to give. I need a solution. The effects during and after the episodes I have take a tremendous toll on my body. I won't go into every symptom I experience right now. I'll save that for a different post.
I'm determined to share my story with the world because I need answers. I want to be around to watch my daughter graduate high school. I deserve answers and treatment.
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